This section includes programs to support family caregivers, education and training opportunities, respite programs, and helpful websites just for you. The resources may help you better manage your caregiving role... and help you to take better care for yourself! You will also find programs specific to Connecticut AND national organizations directing you to local resources.
Program
|
Description
|
Eligibility
|
Phone
|
Website
|
|
|
Caregiver |
Care Recipient |
|
|
| State-Level |
| Alzheimer's Respite Care Program |
Government program assists family caregivers who care for adults with a diagnosis of Alzheimer's disease or related dementia by helping to pay for home and community based services. |
Anyone caring for someone who meets care receiver eligibility criteria |
Multiple requirements: •Adults with a diagnosis of Alzheimer's disease or related dementia •Low income •Not enrolled in Connecticut Homecare Program •Able to afford co-payment for service |
(800) 994 9422 |
http://www.ct.gov/aging services/cwp/view.asp?a=2513&q=313030 |
| Alzheimer’s Resource Center of Connecticut Inc. |
Non-profit organization offers assisted living and skilled nursing in its own facilities specializing in dementia care. Other services include: •Information and referral •Respite care •Adult day care programs •Support groups •Education programs |
Anyone age 18 and older caring for someone with dementia |
Adults with dementia of any age |
(860) 628-3002 |
http://www.alzheimers resourcecenter.org |
| Connecticut Lifespan Respite Coalition (CLRC) |
Provides information and referral services to assist caregivers or family in obtaining respite care. |
Anyone |
Anyone |
Within Connecticut, call: (877) 737-1966 Outside Connecticut, call: (860) 513-0172 |
http://www.ctrespite.org |
| Family Caregiver Support Program (FCSP) |
FCSP services for family caregivers are provided through local area agencies on aging (AAAs) and include: • Information • Assistance • Individual counseling, support groups and caregiver training • Respite care • Limited supplemental services, such as transportation and home modifications |
• Anyone age 18 and older caring for someone who meets care receiver eligibility Special Populations: • Adults age 55 and older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities • Grandparents or other relatives age 55 and older caring for children (age 18 and under) |
• Adults age 60 and older Exception: • Adults with dementia can be any age |
Within Connecticut, call: (800) 994-9422 OR (866) 218-6631 Outside Connecticut, call: (860) 424-5274 |
http://www.ct.gov/aging services/cwp/view.asp?a=2513&q=313064 |
| National-Level |
| AARP (Online Resources) |
A consumer organization for people 50 years and older. Provides online information about issues related to aging, including: • Long-term care and retirement • Financial and legal information • Resources on family caregiving • Internet resources on aging |
Anyone |
Anyone |
(888) OUR-AARP (888) 687-2277 Available weekdays 7:00am - 12:00 midnight (Eastern Time) |
http://www.aarp.org |
| Access to Health Insurance / Resources for Care |
Online resource that provides information on low-cost and affordable health insurance, health care, and hospice. It is a free service from the Actors' Fund of America's Health Insurance Resource Center. |
Anyone |
Anyone |
(800) 798-8447 |
http://www.ahirc.org |
| AgingPro |
Online directory of aging and caregiver support services. Offers access to professionals in aging, resources, educational articles, virtual classroom, ask the expert, and support groups. |
Anyone |
Anyone |
See website for local contact information |
http://www.agingpro.com |
| AGIS |
Provides information and planning tips about long-term care and caregiving. Its website includes a "Find Facilities and Services" search tool to help consumers find long-term care housing, caregiver support, hospice and palliative care programs and other aging services. Offers a "Caregiver Kit" to help caregivers. |
Anyone |
Anyone |
See website for local contact information |
http://www.agis.com |
| Alzheimer's Association |
Provides reliable information, care consultation and supportive services for dementia caregivers through state and local chapters. The website also includes an interactive tool, CareFinder, which helps families to: • Recognize dementia care • Plan and pay for care • Communicate with care providers • Find local support and resources |
Anyone |
Anyone |
(800) 272-3900 Hotline available 24 hours 7 days a week |
http://www.alz.org |
| American Red Cross - Family Caregiver Training Program |
Local Red Cross chapters offer in-person educational sessions, for a nominal fee, on topics such as: • Home safety • Healthy eating • Bathing • Legal and financial issues • Self-care for the caregiver |
Anyone |
__ |
See website for local contact information |
http://www.redcross.org |
| ARCH National Respite Network |
Online "Respite Locator" is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members. |
Anyone |
Anyone |
See website for local contact information |
http://www.respitelocator .org |
| Brain Talk Communities |
An online forum for caregivers and neurology patients to provide support for each other and to learn about community resources and services. |
Anyone caring for someone who meets care recipient eligibility. |
Anyone with a neurological disorder. |
__ |
http://brain.hastypastry. net/forums |
| CancerCare |
Provides support services for anyone affected by cancer including limited financial assistance grants for: • Transportation • Child care • Home care |
Anyone |
Patient must currently be receiving treatment for cancer |
(800) 813-4673 |
http://www.cancercare.org |
| Caregiver.com |
Provides online information and support to family caregivers, including a resource that helps to identify and locate caregiver support groups and other caregiver resources in specific counties, including non-profit organizations, rural caregiver resources and products and services. |
Anyone |
Anyone |
(800) 829-2734 |
http://www.caregiver.com |
| Caregivers Marketplace |
A program that offers cash back on goods and products that are not typically covered by insurance or Medicare. Products eligible for cash back include nutrition, incontinence supplies, bathing and skin care, and aids for daily living. |
Anyone who purchases caregiving products. |
Anyone who purchases caregiving products. |
(800) 888-0889 |
http://caregivers marketplace.com |
| CAREgivinghelp.org |
Provides information about a variety of caregiving topics. Also provides access to geriatric care specialists. |
Anyone |
Anyone |
(773) 576-1602 |
http://www.caregiving help.org |
| Caring Connections |
A program of the National Hospice and Palliative Care Organization that offers free resources and information (online and over the phone) about end-of-life care and services. Includes information about: • Advance care planning • Financial assistance • Hospice care and grief |
Anyone |
Anyone |
(800) 658-8898 HelpLine in Spanish: (877) 658-8896 |
http://www.caringinfo.org |
| Children of Aging Parents |
An online support group for adults caring for their parents or other relatives. Also provides a list of in-person support groups in different states. |
Anyone caring for a family member or friend. |
__ |
(800) 227-7294 |
http://www.caps4 caregivers.org |
| Daily Strength |
Offers over 500 online support communities and information exchange on a variety of health and wellness issues, including caregiving. |
Anyone |
Anyone |
__ |
http://www.dailystrength .org |
| Easter Seals |
Assists children and adults with disabilities and their families by providing adult day services, including medical and social services. |
__ |
Children and adults with disabilities |
(800) 221-6827 |
http://www.easter seals.com |
| Faith in Action |
Network of interfaith volunteer caregiving programs across the country. Volunteers shop, cook, drive or just check in on those with long-term health needs. |
__ |
Eligibility varies by program (see website) |
(866) 839-8865 |
http://www.fianational network.org |
| Family Caregiver Alliance (FCA) |
FCA is a nonprofit caregiver support organization that offers online resources, fact sheets and electronic newsletters which serve as a central source of information and assistance to family caregivers in every state. FCA's National Center on Caregiving offers a national telephone hotline. The website also hosts three online support groups open to the public for caregivers and their loved ones: • Caregiver Online Group • Huntington's Disease & Movement Disorders Online Group • LGBT Caring Community Online Support Group |
Caregiver Online Group: Family and friends caring for adults with cognitive disorders and other chronic health conditions. Huntington's Disease & Movement Disorders Online Group: Families, friends and professionals affected by HD, Parkinson’s or other movement disorder. LGBT Caring Community Online Support Group: Lesbian, gay, bisexual and transgender caregivers of adults with chronic health problems. |
Care recipients looking for information may find it on FCA's website or by calling the hotline. The online groups are not designed for care recipients. |
(800) 445-8106 |
http://www.caregiver.org |
| Family Caregiving 101 |
A joint project of the National Family Caregivers Association and the National Alliance for Caregiving that provides online information, resources and advice on topics related to family caregiving, including personal stories from family caregivers and encouragement for caregivers to protect their own physical and mental health. |
Anyone |
Anyone |
__ |
http://www.familycare giving101.org |
| Lotsa Helping Hands |
An online volunteer coordination service for friends, family, colleagues, and neighbors to assist older adults in need. Offers a private group calendar to organize meals delivery, rides, and other caregiving tasks for a loved one. |
Anyone |
Anyone |
__ |
http://nfca.lotsahelping hands.com |
| National Center on Caregiving (NCC) at Family Caregiver Alliance (FCA) |
Offers a national telephone hotline, online resources and printed publications which serve as a central source of information and assistance to family caregivers in every state. |
Anyone |
Anyone |
(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time) |
http://www.caregiver.org |
| Share the Care |
Offers a handbook for family caregivers, friends and neighbors that contains guidelines for developing a support network and coordinating care for older or disabled individuals. |
Anyone |
Anyone |
(646) 467-8097 |
http://www.sharethe care.org |
| Strength for Caring |
Sponsored by The Caregiver Initiative, Johnson & Johnson, this online resource and community for family caregivers offers articles and advice, including an extensive caregiver manual. Other sections of the site focus on community, health conditions, daily care, housing and money, and insurance. |
Anyone |
Anyone |
__ |
http://www.strengthfor caring.com |
| Well Spouse Association |
A national, non-profit membership organization that provides support to wives, husbands, and partners of the chronically ill and/or disabled through established support groups in communities all over the country. |
Any spouse or partner caring for someone who is chronically ill or disabled. |
__ |
(800) 838-0879 |
http://www.wellspouse.org |